Funding Research and Treatment for Muscular Dystrophy in WA
HFM is pleased to announce Muscular Dystrophy WA as our charity for 2015.
As part of our commitment to MDWA, we will be donating a percentage of our gross revenue, and assisting with projects and events throughout the year.
HFM has a personal connection with MDWA. Our Director of Operations, Matt Holmes’ brother-in-law has muscular dystrophy.
While he is currently doing well, there are many other children in WA who suffer from the genetic disease; many are reliant on wheelchairs and respirators.
There were 2 deaths in WA last year when the power failed overnight causing respirators to stop. With extra funding, MDWA can make more resources available, lowering the likelihood of accidents like this.
The most common form in childhood is Duchenne Muscular Dystrophy, which can see a child using a manual wheelchair by the age of 8, and being completely dependent on an electric one by their early teens. Most suffers can expect only to live to early adulthood.
100% of the charity’s funding comes from donations. Their focus is to improve quality of life for Western Australian’s with muscular dystrophy and allied conditions, supporting carers, funding research for treatment, and ultimately, a cure.
To find out more, visit the Muscular Dystrophy WA website.